The main issue about rare diseases is that most of them are difficult to diagnose.

EASL Policy Dialogues

I advocate for liver cancer and rare liver cancer disease because I have a rare disease myself called Wilson, a rare inherited condition that causes copper levels to build up in several organs, especially the liver, brain and eyes and that caused me a visual disability.

This is why I support EASL's work for more resources, investment and research for liver cancer and hepatologic issues. Check out the interview below.